نتایج جستجو برای: haemophilia a

تعداد نتایج: 13432458  

Journal: :Haemophilia : the official journal of the World Federation of Hemophilia 2012
C D Thornburg S Carpenter S Zappa J Munn C Leissinger

The primary goal of prophylaxis in patients with severe haemophilia is to convert the phenotype from severe to moderate and to prevent the development of chronic arthropathy. Prior studies have demonstrated that prophylaxis decreases episodes of joint bleeds and chronic arthropathy. Effectiveness depends on prescription of prophylaxis and adherence to the prescribed regimen. The aim of this stu...

Journal: :Haemophilia 2021

Introduction Epidemiologic studies suggest that joint bleeding occurs in patients with mild-to-moderate haemophilia, including women and girls. However, most previous on the impacts of haemophilia focus men severe disease. Aim To identify unmet needs haemophilia. Methods The Pain, Functional Impairment, Quality Life (P-FiQ) study assessed impact pain functional impairment health-related quality...

2006
SC LING ACW LEE CW CHAN CY LEE KS KWONG CK LI

ACW LEE MBBS, FHKAM Abstract A survey was performed in late-2003 by questionnaire to all paediatric and adolescent departments under the Hospital Authority of Hong Kong to study the epidemiology and clinical status of local haemophilia patients under 19 years of age. A total of 90 patients were recruited, corresponding to a local prevalence of 6.4 per 100,000. Among these 90 patients, 83.3% wer...

Journal: :Interactive cardiovascular and thoracic surgery 2011
Michele Rossi Raja Jayaram Rana Sayeed

A best evidence topic in cardiac surgery was written according to a structured protocol. The question addressed was whether patients with haemophilia undergoing cardiac surgery have good surgical outcomes. Haemophilia A and haemophilia B are sex-linked recessive inherited diseases affecting males only, with females acting as carriers. The conditions result in various degrees of factor VIII or f...

Journal: :Haemophilia : the official journal of the World Federation of Hemophilia 2005
E Remor P Arranz M Quintana A Villar V Jiménez-Yuste J L Diaz C Rincón C Marrero M Moreno J F Lucia E Martínez I Soto C Sedano R Gonzalez-Boullosa M Prieto M Garcia-Luaces F Hernández-Navarro

Although there is a worldwide interest in the assessment of health-related quality-of-life (HRQoL) in haemophilia patients, no non-disease specific instruments (for adults) are readily available. In this paper, a haemophilia-specific quality-of-life assessment measure for adults (the Hemofilia-QoL questionnaire) has been developed and tested for psychometric properties in 121 adults with haemop...

Journal: :The Journal of the Association of Physicians of India 2003
Shrimati Shetty Kanjaksha Ghosh Dipika Mohanty

With the advent of molecular biology techniques prenatal diagnosis in haemophilia A is generally being performed by first trimester chorionic villus sampling followed by the DNA analysis using various polymorphic markers of factor VIII gene. Here we report antenatal diagnosis in a haemophilia A family performed in the second trimester by measuring both factor VIII:C and factor VIII:Ag in the fe...

2018
Pablo Rendo Janice Lamb Lynne Smith Joanne Fuiman Joan M. Korth-Bradley

: Risk for thrombotic events with factor IX replacement therapy in patients with haemophilia B remains a concern for patients, those who treat them, and regulatory agencies, based on experience with early use of prothrombin complex concentrates. The current post hoc analysis assessed the incidence of thrombotic events and changes in prothrombin fragment 1 + 2, thrombin-antithrombin complex, and...

Journal: :Postgraduate medical journal 1994
S Palmer G R Standen P Yates A Oakhill

A 5 year old female child presented with a psoas haematoma as the first manifestation of haemophilia B. Molecular genetic studies were performed to investigate the inheritance of the disorder and the mechanisms by which females may express the haemophilia B phenotype are discussed.

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