نتایج جستجو برای: miglustat

تعداد نتایج: 163  

2015
Jackie Imrie Lesley Heptinstall Stephen Knight Kate Strong

BACKGROUND Niemann-Pick disease type C (NP-C) is a rare neurovisceral lipid storage disorder characterised by progressive, disabling neurological symptoms and premature death in most patients. During the last decade, national cohort studies have accrued a great deal of data on the symptomatology and natural history of NP-C. METHODS In an observational cohort study, we present a substantial up...

2015
Larry A. Abel Mark Walterfang Matthew J. Stainer Elizabeth A. Bowman Dennis Velakoulis

BACKGROUND Niemann-Pick Type C disease (NPC), is an autosomal recessive neurovisceral disorder of lipid metabolism. One characteristic feature of NPC is a vertical supranuclear gaze palsy particularly affecting saccades. However, horizontal saccades are also impaired and as a consequence a parameter related to horizontal peak saccadic velocity was used as an outcome measure in the clinical tria...

2015
Simona Fecarotta Alfonso Romano Roberto Della Casa Ennio Del Giudice Diana Bruschini Giuseppina Mansi Bruno Bembi Andrea Dardis Agata Fiumara Maja Di Rocco Graziella Uziel Anna Ardissone Dario Roccatello Mirella Alpa Enrico Bertini Adele D’Amico Carlo Dionisi-Vici Federica Deodato Stefania Caviglia Antonio Federico Silvia Palmeri Orazio Gabrielli Lucia Santoro Alessandro Filla Cinzia Russo Giancarlo Parenti Generoso Andria

BACKGROUND Twenty-five patients with Niemann Pick disease type C (age range: 7 months to 44 years) were enrolled in an Italian independent multicenter trial and treated with miglustat for periods from 48 to 96 months. METHODS Based on the age at onset of neurological manifestations patients' phenotypes were classified as: adult (n = 6), juvenile (n = 9), late infantile (n = 6), early infantil...

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