This study aims to determine the relationship between length of illness and quality life people with Type 1 Diabetes Mellitus during COVID-19 pandemic. research is an analytical description a cross-sectional approach using questionnaire telephone interview techniques. The in this was based on several guidelines previous research. Measurements PedsQl 3.2 Module. Data were collected validated con...

Methods The PedsQL 3.0 Rheumatology Module to adolescents (ages 13-18) (Portuguese translation), including teen self report and parent proxy report, and its instructions was sent by mail to the six jSLE patients of our Pediatric Department. Adolescents and their parents should fill the forms separately and return by mail. The queries were unidentified so the answers were anonymous. Data were an...

Introdução: De forma geral, doenças crônicas parecem alterar o eixo psíquico-comportamental. Entretanto, a investigação da qualidade de vida em pacientes pediátricos com diagnóstico desmielinizantes ainda carece informações. Objetivo: Avaliar na faixa etária pediátrica acompanhadas no ambulatório neurologia e incluídas Estudo Multicêntrico Observacional para Caracterização Esclerose Múltipla Pe...

BACKGROUND Schistosomiasis remains a global public health challenge, with 93% of the ~237 million infections occurring in sub-Saharan Africa. Though rarely fatal, its recurring nature makes it a lifetime disorder with significant chronic health burdens. Much of its negative health impact is due to non-specific conditions such as anemia, undernutrition, pain, exercise intolerance, poor school pe...

BACKGROUND Attention-Deficit/Hyperactivity Disorder (ADHD) is the most common chronic mental health condition in children and adolescents. The application of health-related quality of life (HRQOL) as a pediatric population health measure may facilitate risk assessment and resource allocation, the identification of health disparities, and the determination of health outcomes from interventions a...

BACKGROUND Health Related Quality of Life (HRQoL) studies on children with chronic illness such as thalassaemia are limited. We conducted the first study to investigate if children with thalassaemia have a lower quality of life in the four dimensions as measured using the PedsQL 4.0 generic Scale Score: physical, emotional, social and role (school) functioning compared to the healthy controls a...

OBJECTIVES A number of cross-sectional and prospective studies have now been published demonstrating inverse relationships between diet quality and the common mental disorders in adults. However, there are no existing prospective studies of this association in adolescents, the onset period of most disorders, limiting inferences regarding possible causal relationships. METHODS In this study, 3...

PURPOSE To date, there are no studies on quality of life (QoL) and symptom prevalence reported by pediatric oncology patients in Lebanon. The purpose of this study was to evaluate the QoL, symptom prevalence and symptom management among a sample of pediatric oncology patients. METHODS The study design was cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) cancer module and the ...

PURPOSE Health related quality of life (HRQL) assessments during therapy for pediatric cancer provide valuable information to better understand the patient experience. Our objective was to determine the impact of a patient-reported outcome (PRO) coordinator on HRQL questionnaire completion rates during a pediatric acute myeloid leukemia (AML) trial. METHODS AAML1031 is a multicenter Children'...

BACKGROUND Spinal muscular atrophy (SMA) is a genetic disease of the anterior horn cell with a frequency of 8 per 100 000 live births and a high rate of mortality during infancy. The American Spinal Muscular Atrophy Randomized Trials (AmSMART) Group is an organization of 5 centers formed to perform clinical trials in children with SMA. OBJECTIVE To devise reliable methods to measure strength,...