BACKGROUND Although BRCA1/2 genetic testing is discouraged in minors, mothers may disclose their own results to their children. Factors affecting patients' disclosure decisions and patient outcomes of disclosure are largely unknown. METHODS Mothers (N = 221) of children aged 8 to 21 years enrolled in this prospective study of family communication about cancer genetic testing. Patients underwe...

To better understand the process of disclosing medical errors to patients, this research offers a case analysis using Petronios's theoretical frame of Communication Privacy Management (CPM). Given the resistance clinicians often feel about error disclosure, insights into the way choices are made by the clinicians in telling patients about the mistake has the potential to address reasons for res...

Daniel C Cattran, MD, FRCPC (Work Group Co-Chair), is a graduate of the University of Toronto Medical School and completed his postgraduate training both in Toronto, Canada and Sydney, Australia. He is currently a Professor of Medicine at the University of Toronto and a senior scientist at the Toronto General Research Institute. His administrative roles have included Chairman of the Royal Colle...

Adeera Levin, MD, FRCPC (Work Group Co-Chair), is Professor of Medicine, Division Head of Nephrology at the University of British Columbia, and Consultant Nephrologist at Providence Health Care/St Paul’s Hospital, in Vancouver Canada. Dr Levin is the Executive Director of the BC Renal Agency, which oversees the care, planning, and budgets for kidney services in the province of British Columbia....

Should a seller release public information before, or indeed during, an auction? The posing and answering of this question by Milgrom and Weber (1982a) (MWa) provides one of the cornerstones of present day auction theory and the result that disclosure is good for revenue has even become part of folk wisdom in some policy areas. In context of their general symmetric a¢ liated model. Milgrom and ...

When using electronic services, people are often asked to provide personal information. This raises many privacy issues. To gain the trust of the user, service providers can use privacy policy languages such as P3P to declare the purpose and usage of this personal information. User agents can compare these policies to privacy preferences of a user and warn the user if his privacy is threatened....

Gavin J Becker, MD, FRACP (Work Group Co-Chair), is Professor and Director of Nephrology at the Royal Melbourne Hospital and Clinical Director of Renal and Endocrinology Services at Melbourne Health. He maintains an active role in numerous professional societies including serving as a current member of the International Society of Nephrology (ISN) Executive Committee, Cochrane Renal Collaborati...

We analyze a model of competition in Bayesian persuasion in which two or more senders vie for the patronage of a receiver by disclosing information about their respective proposal qualities. The model’s primitives that define the competitive environment are: the ex-ante correlation of senders’ proposal qualities; the respective ex-ante expected proposal qualities; and the number of competing se...

OBJECTIVES To investigate patients' and family members' perceptions and experiences of disclosure of healthcare incidents and to derive principles of effective disclosure. DESIGN Retrospective qualitative study based on 100 semi-structured, in depth interviews with patients and family members. SETTING Nationwide multisite survey across Australia. PARTICIPANTS 39 patients and 80 family mem...