The Global Registry of Biodiversity Repositories is an online metadata resource for biodiversity collections, the institutions that contain them, and associated staff members. The registry provides contact and address information, characteristics of the institutions and collections using controlled vocabularies and free-text descripitons, links to related websites, unique identifiers for each i...

INTRODUCTION In 2004, the Midwives Alliance of North America's (MANA's) Division of Research developed a Web-based data collection system to gather information on the practices and outcomes associated with midwife-led births in the United States. This system, called the MANA Statistics Project (MANA Stats), grew out of a widely acknowledged need for more reliable data on outcomes by intended pl...

The need to optimize the use of all the information that modern technological tools have made available to the physician ENT/audiologist has increasingly emerged within the Italian scientific community. Towards this purpose, it is necessary to create a registry of the patients using cochlear implants (CIs). This registry will include a homogeneous summary of the information deriving from multip...

BACKGROUND The information concerning the currently existing healthcare registries in our country is not readily accessible, is scarce and some are not well-known, possibly being underused in comparison to their many potential uses. This study is aimed at evaluating the characteristics of the Spanish Healthcare registries and the utilization thereof, especially in Healthcare technology assessme...

Metadata registries comprising sets of categories to be used in data collections exist in many fields. The purpose of a metadata registry is to facilitate data exchange and interoperability within a domain, and registries often contain definitions and examples. In this paper we will argue that in order to ensure completeness, consistency, user-friendliness and extensibility, metadata registries...

A registry is a list of information recorded by a trusted authority. Registries have security requirements for data integrity and availability, and for the ability to connect with other registries. Building registries on a blockchain leverages key properties of blockchains, including data integrity, immutability, and availability. By using a blockchain as uniform infrastructure, different regis...

Widespread adoption of electronic health records (EHRs) and expansion of patient registries present opportunities to improve patient care and population health and advance translational research. However, optimal integration of patient registries with EHR functions and aggregation of regional registries to support national or global analyses will require the use of standards. Currently, there a...

Abstract Cancer registries help us to understand skin cancer cause, prevalence, treatment and prevention. They provide evidence gain new healthcare resources. This paper studies the evolution of their relevance dermatology. In 16th century, ‘Bills Mortality’, first English registry, catalogued number causes death in London parishes. Originally set up track bubonic plague, it expanded cover othe...