نتایج جستجو برای: pedsql
تعداد نتایج: 630 فیلتر نتایج به سال:
The aim of the study was to describe validity and reliability Turkish version Juvenile Arthritis Functional Assessment Report (JAFAR) in children/adolescents with Idiopathic (JIA). Sixty-nine JIA were included study. JAFAR(TR)-Child Parent forms applied patients their parents for test retest at one-week intervals, did not receive additional treatment his/her pharmacological change that week. Te...
Lexical comprehension is commonly measured by parent report, but it may be difficult for parents of children with ASD to accurately judge their child's comprehension. We compared parent report to an eye-gaze measure of lexical comprehension in which participants observed pairs of images on a screen, along with accompanying speech that named one of the two images. Twenty-two toddlers with ASD pa...
BACKGROUND AND PURPOSE The DRAGON score predicts functional outcome in the hyperacute phase of intravenous thrombolysis treatment of ischemic stroke patients. We aimed to validate the score in a large multicenter cohort in anterior and posterior circulation. METHODS Prospectively collected data of consecutive ischemic stroke patients who received intravenous thrombolysis in 12 stroke centers ...
Abstract Background Severe hand injuries due to firecrackers are unfortunately common in the Netherlands. These expected have long-term functional and psychological sequalae. We performed a study assess impact of such on victims their parents. Methods Eight sequential adolescent patients that underwent surgery for firecracker-induced severe between September 2012 March 2015 were included. The p...
Introduction. Mucopolysaccharidoses (MPSs) represent a group of rare lysosomal storage diseases, associated with the decline in life expectancy and impairing it’s quality. Despite prolonged evaluation effectiveness pathogenic therapy, patient-reported outcomes are poorly defined. The aim study. To describe impact enzyme-replacement therapy (ERT) on quality MPS children, using parent-completed v...
Background Foot and ankle complaints are common in people with hypermobility. Children with hypermobility (Beighton score ≥4/9) were recruited for a longitudinal study from The Children’s Hospital at Westmead in Sydney, Australia. Baseline data included Beighton score, BMI for age, Star Excursion Balance Test (SEBT), Foot Posture Index (FPI), anterior drawer, subtalar inversion stress test, Low...
Abstract Background The aim was to compare parent and child-reported health-related quality of life (HRQOL) children born with esophageal atresia (EA) determine factors that affect the level parent–child agreement. Methods We included 63 dyads EA aged 8–18 from Germany Sweden. generic PedsQL 4.0™ questionnaire condition-specific QOL were used assess children’s HRQOL parents' perspectives. PedsQ...
Although refugee adolescents and children are recognised as a health risk population, few studies have explored their Health-related Quality of Life (HRQOL). The present study investigated 1) the sociodemographic predictors of HRQOL such as ethnicity, trauma exposure, and length of residency in Australia in a multiethnic paediatric population with refugee experiences and 2) the relationship bet...
The aim of this two-year prospective RCT-study was to evaluate children’s HRQOL after a family intervention providing support with four sessions for six months following diagnosis of type 1 diabetes (T1DM), with follow-up sessions at 12, 18, and 24 months. Ninety-eight children aged 3-15 years, recently diagnosed with T1DM, participated with their parents. At six and 24 months after diagnosis, ...
OBJECTIVE To translate to Brazilian Portuguese and to evaluate the reliability of the Healthcare Satisfaction (HS) Generic Module version 3.0 of the PedsQL inventory for the Brazilian culture. METHOD The methods recommended by the authors of the original version of the questionnaire were used: 1) translation by bilingual experts; 2) back translation into English and evaluation by the authors ...
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