PURPOSE To explore the experiences of patients and carers involved in patient and public involvement (PPI) activities for stroke research. METHODS Semi-structured interviews conducted with stroke survivors and carers (n = 11) were analysed using thematic analysis. RESULTS Four key themes emerged: impact of PPI on the individual and the research process, credibility and expertise, level of i...

Public and patient involvement (PPI) - the collaboration in research with members of public patients relevant experience is becoming well established health service UK. It supported by funders academic institutions. Published principles guidelines for researchers, developed through consultation consensus building, are available. Meanwhile, as genome sequencing adopted into routine care, transla...

Background and aims Slow recruitment and poor retention are common challenges to the successful delivery of clinical trials, particularly surgical trials. Patient and public involvement (PPI) in designing and conducting clinical trials has the potential to enhance recruitment and retention but there have been few attempts at rigorous evaluation. The aim of PIRRIST is to develop a PPI interventi...

BACKGROUND Guidelines suggest the patient community should be consulted from the outset when designing and implementing basic biomedical research, but such patient communities may include conflicting views. We examined how engagement occurred in one such instance. OBJECTIVE Our objective was to scrutinize patient and public involvement (PPI) by a pan-European biomedical consortium working to ...

OBJECTIVES Although there is increased awareness of patient and public involvement (PPI) among health technology assessment (HTA) organizations, evaluations of PPI initiatives are relatively scarce. Our objective as members of Health Technology Assessment International's (HTAi's) Patient and Citizen Involvement Group (PCIG) was to advance understanding of the range of evaluation strategies adop...

The literature on patient and public involvement (PPI) in research covers a wide range of topics. However, one area of investigation that appears under developed is the sustainability and impact of PPI beyond involvement in time-limited research projects. This paper presents a case study of PPI development in one primary care research centre in England, and its approach to making this sustainab...

BACKGROUND Patient and public involvement (PPI) in studies carried out by the UK Medical Research Council Clinical Trials Unit (MRC CTU) at University College London varies by research type and setting. We developed a series of case studies of PPI to document and share good practice. METHODS We used purposive sampling to identify studies representing the scope of research at the MRC CTU and d...

OBJECTIVES Public and patient involvement (PPI) is required at all stages of research by many funding bodies such as the National Institute for Health Research (NIHR). Given the high priority of PPI within NIHR programmes and the associated costs, it is important that the process of involvement and impact of PPI on health services research is evaluated. We aimed to develop a tool to quantitativ...