Recently there has been a remarkable upsurge in activity surrounding the adoption of personal health record (PHR) systems for patients and consumers. The biomedical literature does not yet adequately describe the potential capabilities and utility of PHR systems. In addition, the lack of a proven business case for widespread deployment hinders PHR adoption. In a 2005 working symposium, the Amer...

BACKGROUND Several obstacles prevent the adoption and use of personal health record (PHR) systems, including users' concerns regarding the privacy and security of their personal health information. OBJECTIVE To analyze the privacy and security characteristics of PHR privacy policies. It is hoped that identification of the strengths and weaknesses of the PHR systems will be useful for PHR user...

RA is the process whereby a user of a health service has the power to access their personal health record (PHR). The PHR means any health record holding information pertaining exclusively to that person. The PHR can be held centrally, when all health records, including community, GP and hospital, are held in a central store; or they can be distributed, stored in different places. RA thus means ...

Introduction: In advanced medicine, large amounts of data are produced. However, there is always a gap between their collection and their understanding and interpretation. Thus, the minimum data sets are prepared. Thalassemia major is a chronic genetic blood disorder and the most common genetic disorder in the world. So, the aim of this study was to determine the data set for personal health re...