Background: The Food and Drug Administration patient-reported outcome (PRO) guidance provides standards for PRO development, but these standards bring scientific and logistical challenges which can result in a lengthy and expensive instrument development process. Thus, more pragmatic methods are needed alongside traditional approaches. Methods: Partnering with the National Ankylosing Spondyliti...

OBJECTIVE Live kidney donation is generally viewed as a welcome treatment option for severe kidney disease. However, there is a disparity in the body of research on donor experiences and postdonation outcome, and lack of knowledge on long-term consequences described by the donors. This study was conducted to provide insight into donors' subjective meanings and interpretation of their experience...

BACKGROUND The United States National Physical Activity Plan (NPAP; 2010), the country's first national plan for physical activity, provides strategies to increase population-level physical activity to complement the 2008 physical activity guidelines. This study examined state public health practitioner awareness, dissemination, use, challenges, and recommendations for the NPAP. METHODS In 20...

Although ‘Halcyon’ means serene environment which pervasive computing aims at, we have tried to present a different interpretation of this word. Through our approach, we look at it in context of achieving future ‘calm technology’. The paper gives a general overview of the state of pervasive computing today, proposes the ‘HALCYON Model’ and outlines the ‘social’ challenges faced by system design...

Although ‘Halcyon’ means serene environment which pervasive computing aims at, we have tried to present a different interpretation of this word. Through our approach, we look at it in context of achieving future ‘calm technology’. The paper gives a general overview of the state of pervasive computing today, proposes the ‘HALCYON Model’ and outlines the ‘social’ challenges faced by system design...

This paper explores the utility of in-depth interviews for understanding how individuals and communities socially construct the risks (degree of threat) from environmental hazards (phenomena which threaten), and describes some challenges for guarding against threats to trustworthiness (qualitative rigor). The paper involves the interface between a case study of the social construction of enviro...

Colorectal cancer is the second highest cause of cancer deaths. There are significant physical and psycho-social effects on quality of life with advanced disease. Despite this, there are few accounts of the patient experience from advanced illness through to dying. We elicited the longitudinal experiences of living and dying with incurable metastatic colorectal cancer by conducting serial inter...

OBJECTIVE Percutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their next-of-kin experienced this new treatment option. DESIGN Qualitative explorative design with indi...