Efforts to achieve effective and meaningful patient and public involvement (PPI) in healthcare have existed for nearly a century, albeit with limited success. This brief commentary discusses a recent paper by Carter and Martin exploring the "Challenges Facing Healthwatch, a New Consumer Champion in England," and places these challenges in the context of the broader struggle to give a voice to h...

Background: Evidence of patient and public involvement (PPI) in health research dissemination is weak and the development of mechanisms to assist the adoption and diffusion of PPI outcomes into research findings, patient experience and clinical practice is at an early stage. Aim: This paper seeks directly to address this weakness by increasing researchers’ awareness and understanding of the pot...

PLAIN ENGLISH SUMMARY It is recommended that research studies are carried out with or by patients and the public through their involvement from the beginning and in as many stages as possible (known as PPI). Some studies formally invite patients and the public to participate in interviews and focused group discussions to collect views about topics (known as qualitative research). In our study o...

We reflect on our experiences using Responsible Research and Innovation (RRI) in the project “TAS for Health at Home”. Driven by a multi-disciplinary research team that consisted of experts mental health, stroke rehabilitation, management multiple sclerosis, human factors, human-computer interaction, privacy, cybersecurity, architecture, Patient Public Involvement (PPI) groups, aimed eliciting ...

Plain English summary If people can read, understand and act on health information to better their health and reduce illness, they are thought to have "adequate" health literacy. Poor health literacy can mean people are less able to access health care and manage their health. Health literacy tends to worsen as adults get older, and is especially poor in adults age 65 and over. Ideally, health l...

Plain English summary Paediatric Intensive Care (PIC) provides care to extremely ill children. Research in this area can be difficult because children are often too sick to discuss being involved in a study and parents are too upset about their child to think about taking part. This makes it even more important that research is well designed. We conducted a review of the literature about involv...

Abstract This paper focuses on recent developments in UK health research policy, which place new pressures researchers to address issues of accountability and impact through the implementation patient public involvement (PPI). We draw an in-depth interview study with 20 professional researchers, we analyse their experiences competing for funding, focusing PPI as a process governance. unearth do...

The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk). Patients and Public Involvement (PPI) has been ...

Patient and public involvement (PPI) means doing research with the patient or members of wherein they contribute to design, conduct dissemination. Evidence shows need for guidance about PPI among early career researchers. Our discussions during a doctoral workshop showed differences in our experiences support we received. This motivated us share reflections highlight gaps training support. Betw...

Background: Public and patient involvement (PPI) improves quality relevance of research (1). PPI is advocated by policy makers funding bodies supported EULAR (2). Arthritis Research Limerick (ARL) a partnership between researchers at the University clinicians Hospitals Limerick. representatives have been involved in ARL projects, however no formal network had established prior to 2020. The need...