For Indigenous Māori in Aotearoa New Zealand, the impact of disability can be pervasive yet often invisible due to considerable gaps accuracy and interpretations data information for Māori. We present findings from a kaupapa qualitative study that centres perspectives with lived experience disability, exploring how they define negotiate their identities within context health wellbeing. Our emph...

Children with CHARGE syndrome are truly ‘‘multi-sensory impaired,’’ having difficulties not only with vision and hearing but also with the senses that perceive balance, touch, temperature, pain, pressure, and smell, as well as problems with breathing and swallowing, eating and drinking, digestion, and temperature control. Children with CHARGE present a unique array of behaviors that are frequen...