OBJECTIVE Patient and public involvement (PPI) has become an established theme within the UK health research policy and is recognised as an essential force in the drive to improve the quality of services and research. These developments have been particularly rapid in the cancer field. METHODS This paper outlines a model of PPI in research (known as the North Trent Cancer Research Network Con...

BACKGROUND Patient and public involvement (PPI) is framed as positive for individuals, the health system, public health, as well as for communities and society as a whole. We investigated whether preferences for PPI differed between two countries with Beveridge type health systems-Sweden and England. We measured willingness to be involved in individual treatment decisions and in decisions about...

In this Open Letter we present reflections from three different perspectives on the integration of public and patient involvement (PPI) in a research trial. We reflect experience having employed as contract researcher, with no prior experience, feasibility trial cognitive rehabilitation multiple sclerosis. This is written by PPI team member researcher principle investigator. will discuss...

BACKGROUND There is a growing literature on evaluating aspects of patient and public involvement (PPI). We have suggested that at the core of successful PPI is the dynamic interaction of different forms of knowledge, notably lay and professional. We have developed a four-dimensional theoretical framework for understanding these interactions. AIM We explore the practical utility of the theoret...

BACKGROUND Study feasibility and deliverability can benefit from involving patients and carers in the research process, known as patient and public involvement (PPI). There is less evidence on the experiences of patients and carers themselves and we require more information across a range of studies, health conditions and research stages. AIMS This study explored how patients and carers in ei...

Patient and public involvement (PPI) in UK National Health Service (NHS) research has become an imperative in policy and practice. However, lack of clarity on what PPI is (or might be) has given rise to a poorly monitored, complex field of activity, variously framed by the expectations of policy makers, funders, host organizations, researchers, health professionals, individual recruits, volunte...

Introduction Patient and public involvement (PPI) is an expectation when conducting a health technology assessment (HTA), but there little guidance for those wishing to embed PPI developing HTA proposal. We wanted ensure was central in preparing proposal potentially of any intervention pelvic organ prolapse (POP) women. Methods conducted open process recruit two co-applicants who, after inducti...