BACKGROUND Citizens, patients and their representatives are increasingly insisting on working with health professionals to organize and discuss research protocols. The International Committee of Medical Journal Editors recommended setting up a public clinical trial registry where anyone can find key information about a trial. Around the world, governments have, in fact, now begun to legislate m...

Denmark has an extensive collection of national and regional medical registries. There are many advantages to registry-based research when investigating genetic diseases which, due to their rarity, can be difficult to identify. In this study, we aimed to provide an updated overview of Danish registries for medical genetic conditions and describe how data linkage across registries can be used to...

WHOIS output objects from registries, including both Regional Internet Registries (RIRs) and Domain Name Registries (DNRs), were collected and analyzed. This document describes the process and results of the statistical analysis of existing WHOIS information. The purpose of this document is to build an object inventory to facilitate discussions of data objects included in Registration Data Acce...