W ITH an increasing U.S. focus on quality and cost, and the steady maturation of health information technologies, the opportunity to leverage electronic clinical registries to improve outcomes and appropriate utilization of care has never been greater. Two laws passed by the administration of United States President Barack Obama and the United States Congress—the Health Information Technology f...

AIM The aim of this study was to describe content and procedures in some selected Swedish health care quality registries (QRs) of relevance to regulatory decision-making. METHODS A workshop was organized with participation of seven Swedish QRs which subsequently answered a questionnaire regarding registry content on drug treatments and outcomes. Patient populations, coverage, data handling an...

BACKGROUND Since September 2005 the International Committee of Medical Journal Editors has required that trials be registered in accordance with the World Health Organization (WHO) minimum dataset, in order to be considered for publication. The objective is to evaluate registries' and individual trial records' compliance with the 2006 version of the WHO minimum data set. METHODS A retrospecti...

Cancer registry data collection involves, at a minimum, collecting data on demographics, tumor characteristics, and treatment. A common, identified, and standardized set of data elements is needed to share data quickly and efficiently with consumers of this data. This project highlights the fact that, there is a need to develop common data elements; Surveys were developed for central cancer reg...

BACKGROUND The ability and behaviour of the capture-recapture method using a virtual three-source model for evaluation of the level of completeness of case ascertainment requires exploration. METHODS Cancer cases obtained from 9 population-based cancer registries in Thailand during 2003 to 2007 were applied for capture-recapture using a model based on clinical, pathological and mortality data...

INTRODUCTION Research on associations between medication use during pregnancy and congenital anomalies is significative for assessing the safe use of a medicine in pregnancy. Congenital anomaly (CA) registries do not have optimal information on medicine exposure, in contrast to prescription databases. Linkage of prescription databases to the CA registries is a potentially effective method of ob...

background: cancer registries are important infrastructure for cancer control programs. however most developing countries lack population based cancer registry. in iran there cancer incidence is estimated based on pathology-based cancer registry. in this study we evaluated results of the nationwide pathology-based cancer registry in iran. materials and methods: we compared age-standardized inci...

Registries have key roles in cancer incidence, mortality and survival monitoring and in showing disparities across the population. Incidence monitoring began in New South Wales in 1972 and other jurisdictions soon followed. Registry data are used to evaluate outcomes of preventive, screening, treatment and support services. They have shown decreases in cancer incidence following interventions a...

Participant registries are repositories of individuals who have expressed willingness to learn about studies for which they may be eligible. Registries are increasingly being utilized to improve recruitment to preclinical Alzheimer's disease (AD) clinical trials, which require large screening efforts to identify adequate numbers of participants who meet enrollment criteria. Recruiting to precli...

As random digit dialing becomes increasingly unfeasible for many types of studies, alternative methods for control selection are needed, especially for studies of childhood cancer. US birth registries are an appealing source of young control children because they are population based, provide demographic and pregnancy data for comparison of participants with the study base, and maintain data th...