Consent ain’t anything: dissent, access and the conditions for consent

Voluntary contributions by consent or dissent

We study games where voluntary contributions can be adjusted until a steady state is found. In consent games contributions start at zero and can be increased by consent, and in dissent games contributions start high and can be decreased by dissent. Equilibrium analysis predicts free riding in consent games but, in contrast, as much as socially efficient outcomes in dissent games. In our experim...

Informed dissent: a new corollary to the informed consent doctrine?

Normative consent is not consent.

The UK has an opt-in system of consent for postmortem organ donation. More specifically, the Human Tissue Act 2004 prohibits the removal, storage, and use of organs postmortem for a range of ‘‘scheduled purposes’’—which include transplantation—unless ‘‘appropriate consent’’ has been given. Appropriate consent can be given by the donor premortem by signing and carrying a donor card, or by opting...

Informed consent for pragmatic trials--the integrated consent model.

Learning health care systems hold great promise for improving medical care by systematically integrating the delivery of medical services with clinical research. In such systems, the generation of knowledge would be “embedded into the core of the practice of medicine,” leading to “continual improvement in care.”1 But is the goal of systematically integrating knowledge generation with health car...

Consent Codes: Upholding Standard Data Use Conditions

A systematic way of recording data use conditions that are based on consent permissions as found in the datasets of the main public genome archives (NCBI dbGaP and EMBL-EBI/CRG EGA).