Harmonizing Privacy Laws to Enable International Biobank Research
نویسندگان
چکیده
منابع مشابه
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In order to identify new ways to prevent, diagnose and treat diseases, biobanks systematically collect samples of human tissues and population-wide data on health and lifestyle. Efficient access to population biobank data and to biomaterial is crucial for development and marketing of new pharmaceutical products, especially in the area of personalised medicine. However, such access is hindered b...
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A research biobank is a collection of personal health and lifestyle information, including genetic samples of yet unknown but possibly large information potential about the participant. For the participants, the risk of taking part is not bodily harm but infringements of their privacy and the harmful consequences such infringements might have. But what do we mean by privacy? Which harms are we ...
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ژورنال
عنوان ژورنال: Journal of Law, Medicine & Ethics
سال: 2015
ISSN: 1073-1105,1748-720X
DOI: 10.1111/jlme.12310