OP0167 EULAR POINTS TO CONSIDER FOR PATIENT EDUCATION, PAIN MANAGEMENT AND PHYSICAL ACTIVITY ADAPTED TO THE SELF-MANAGEMENT OF JUVENILE-ONSET RHEUMATIC AND MUSCULOSKELETAL DISEASES DURING TRANSITIONAL CARE. THE EULAR MOVE-UP PROJECT
نویسندگان
چکیده
Background The EULAR task force “Implementation of a mobile health app for the self-management juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) during transitional care” aims at designing, developing implementing program through smartphone (i.e., Move-Up app). first step this was to adapt current recommendations/points originally developed adults, young people (YP) with jRMDs. Objectives Adapting patient education, pain management physical activity jRMDs care. Methods A multidisciplinary taskforce 25 members from 11 European countries convened. Using Delphi technique, level agreement established by anonymous online voting in three rounds. Results Four overarching principles 8 points consider were formulated (Table 1). high, ranging 8.7 9.9. Conclusion This work will feed into an evidence-based framework inform development aiming improving quality care Table 1. Overarching Agreement (0 10) 1 YP should be offered advice recommendations provided access relevant resources care, as soon possible following diagnosis 9.6 2 Health professionals rheumatology use digital interventions support 9.5 3 content delivery individually tailored needs-based according patients’ priorities, preferences, capabilities 4 Transitional have clear personalised aims, which evaluated over time, preferably combination objective subjective (patient-reported outcome measures) assessments 9.9 Adapted education Education is planned interactive learning process designed enable manage their chronic condition, optimise well-being consist variety formats programme shared decision-making 9.4 include evaluation outcomes reflecting both knowledge acquired and, most importantly, translation behaviour change All patients carers on importance maintaining healthy body composition explained that unhealthy could contribute disability 9.8 5 Non-pharmacological approaches (e.g., activity, lifestyle change, psychological interventions) prioritised newly-diagnosed those If indicated, receive pharmacological treatment recent 6 Physical part optimised lifespan individuals all ages 7 has benefits helps establishing behaviours lifestyles adulthood Healthcare providers different line YP’s preferences disease requirements = Young people; diseases; REFERENCES: NIL. Acknowledgements: Disclosure Interests Rafael Prieto-Moreno: None declared, Javier Courel-Ibañez: Erica Briones-Vozmediano: Saskya Angevare: Jordi Anton: Patrocinio Ariza-Vega: Ilaria Bini: Daniel Clemente: Matilde Correia: Wendy Costello: De Cock Diederik: Andrea Domjan: Leticia Leon Mateos: Marques: Kirsten Minden Grant/research from: Honoraria Pfizer, Novartis Medac., Ana Filipa Mourão: Aurelie Najm: Seza Özen: Georgina Pimentel: Zainab Saleem: Tomas Vetrovsky: Nico Wulffraat: Zacarias: Yeliz Prior: Loreto Carmona: Fernando Estevez-Lopez: declared.
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1Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom, 2 NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK, 3Division of Rheumatology, Medical University of Vienna, Vienna, Austria, 4Department of Orthopaedics, Rehabilitation and Physical Therapy, Leiden University Medical Centre, Leiden, Netherlands, 5Department of Internal Medicine...
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To develop standards and recommendations for transitional care for young people (YP) with juvenile-onset rheumatic and musculoskeletal diseases (jRMD). The consensus process involved the following: (1) establishing an international expert panel to include patients and representatives from multidisciplinary teams in adult and paediatric rheumatology; (2) a systematic review of published models o...
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ژورنال
عنوان ژورنال: Annals of the Rheumatic Diseases
سال: 2023
ISSN: ['1468-2060', '0003-4967']
DOI: https://doi.org/10.1136/annrheumdis-2023-eular.264