Multiple sulfatase deficiency with neonatal manifestation

نویسندگان

  • Livia Garavelli
  • Lucia Santoro
  • Alexandra Iori
  • Giancarlo Gargano
  • Silvia Braibanti
  • Simona Pedori
  • Nives Melli
  • Daniele Frattini
  • Lucia Zampini
  • Tiziana Galeazzi
  • Lucia Padella
  • Stefano Pepe
  • Anita Wischmeijer
  • Simonetta Rosato
  • Ivan Ivanovski
  • Lorenzo Iughetti
  • Chiara Gelmini
  • Sergio Bernasconi
  • Andrea Superti-Furga
  • Andrea Ballabio
  • Orazio Gabrielli
چکیده

Multiple Sulfatase Deficiency (MSD; OMIM 272200) is a rare autosomal recessive inborn error of metabolism caused by mutations in the sulfatase modifying factor 1 gene, encoding the formylglycine-generating enzyme (FGE), and resulting in tissue accumulation of sulfatides, sulphated glycosaminoglycans, sphingolipids and steroid sulfates. Less than 50 cases have been published so far. We report a new case of MSD presenting in the newborn period with hypotonia, apnoea, cyanosis and rolling eyes, hepato-splenomegaly and deafness. This patient was compound heterozygous for two so far undescribed SUMF1 mutations (c.191C > A; p.S64X and c.818A > G; p.D273G).

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عنوان ژورنال:

دوره 40  شماره 

صفحات  -

تاریخ انتشار 2014