Establishing community advisory boards for clinical trial research in Malawi: engendering ethical conduct in research.
نویسنده
چکیده
In this article I deal with extending the ethical principles of research to include communities through the establishment of Community Advisory Boards (CABs). The aim of the project on which this article is based demonstrates the need for protecting communities that participate in research in order to stimulate ethical conduct in research in Malawi. In the article, I provide an overview on the role and functions of CABs. I discuss the establishment of CABs in Malawi and present descriptions of the processes and challenges involved. I conclude by sharing experiences of some of the key lessons learnt from the establishment of CABs.
منابع مشابه
Ethical challenges in conducting research in humanitarian crisis situations.
Research is vital to accurately describe phenomena in humanitarian emergency situations and to evaluate the effectiveness and appropriateness of interventions. Although the ethical principles of justice, beneficence and respect for autonomy respect for persons should be upheld in research, their application in emergency situations may differ from non-emergency situations. Just like in non-emerg...
متن کاملMotivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border
BACKGROUND Community engagement is increasingly promoted as a marker of good, ethical practice in the context of international collaborative research in low-income countries. There is, however, no widely agreed definition of community engagement or of approaches adopted. Justifications given for its use also vary. Community engagement is, for example, variously seen to be of value in: the devel...
متن کاملEngaging with Community Advisory Boards (CABs) in Lusaka Zambia: perspectives from the research team and CAB members
BACKGROUND The use of a Community Advisory Board (CAB) is one method of ensuring community engagement in community based research. To identify the process used to constitute CABs in Zambia, this paper draws on the perspectives of both research team members and CAB members from research groups who used CABs in Lusaka. Enabling and restricting factors impacting on the functioning of the CAB were ...
متن کاملCommunity involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations.
The National Bioethics Advisory Commission has proposed that regulatory oversight for research with human subjects be extended beyond the protection of individual research participants to include the protection of social groups. To accomplish this, the commission recommends that investigators and ethics review boards a) work directly with community representatives to develop study methods that ...
متن کامل2-International One
s we stand poised on the frontiers of biomedical science, populations worldwide face a broad range of health concerns as well as many different issues related to the conduct of clinical trials in international health research. The multiple contexts within which biomedical research proceeds call for an array of research designs in order to forge scientific developments and advance clinical knowl...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
- Malawi medical journal : the journal of Medical Association of Malawi
دوره 25 4 شماره
صفحات -
تاریخ انتشار 2013