PLAIN ENGLISH SUMMARY In the United Kingdom (UK), official bodies such as the Department of Health and research funders such as the National Institute for Health Research support and encourage lay involvement in all stages of research studies. The SHARED study has had substantial patient and public involvement (PPI) from developing the idea to dissemination. The aim of the study has been to dev...

INTRODUCTION The emergence of patient and public involvement (PPI) in healthcare in the UK can be traced as far back as the 1970s. More recently, campaigns by harmed patients and their relatives have emerged as a result of clinical failings in the NHS, challenging paternalistic healthcare, which have led to a new focus on PPI in quality and safety, nationally and internationally. Evidence sugge...

Aim To investigate, firstly, research priorities for people with periodontitis and those diabetes. Secondary aims were to explore disease self-management barriers, difficulties enhancers and/or diabetes, mutual learning in patient groups regarding self-care views of academic researchers on patient-derived prioritisation. Materials methods Research prioritisation management was based the James L...

Background: Conducting Patient and Public Involvement (PPI) in health research is a way of building knowledge that incorporates the experience service users, adds impact, helps avoid wasting resources on findings have little relevance to people or cannot be implemented. We argue there need extend ethical considerations currently focused participants with aphasia encompass guide expectations inv...

This article examines citizen participation in health research, where funders increasingly seek to promote and define ‘patient and public involvement’ (PPI). In England, the focus of our study, government policy articulates a specific set of meanings attached to PPI that fuse patients’ rights and responsibilities as citizens, as ‘consumers’ and as ‘lay experts’. However, little is known about t...

Introduction Prehabilitation in colorectal surgery is evolving and may minimise postoperative morbidity mortality. With many different healthcare professionals contributing to the prehabilitation literature, there significant variation reported primary endpoints that restricts comparison. In addition, has been limited work on patient-related outcome measures suggesting patients with cancer need...