Social anxiety is prevalent in autistic adolescents. Using virtual reality to deliver exposure tasks cognitive behavioural therapy (VRCBT) – the treatment-of-choice may improve its accessibility autism spectrum disorder (ASD). In preparation for testing this, service-providers (i.e. clinicians experienced with this patient group; n = 17), service-users adolescents diagnosed social anxiety; 5), ...

Results We interviewed 21 chief investigators, 10 trial managers and 17 PPI contributors from 28 trials. Over half the informants indicted that PPI had made a difference, influencing either an aspect of a trial, or how trialists felt about a trial. Informants described how PPI’s impact depended on the quality of chief investigators’ goals and plans for PPI, the quality of relationships between ...

INTRODUCTION People with advanced cancer and their carers experience stress and uncertainty which affects the quality of life and physical and mental health. This study aims to understand how patients and carers recover or maintain psychological well-being by exploring the strategies employed to self-manage stress and uncertainty. METHODS AND ANALYSIS A longitudinal qualitative interview appr...

PLAIN ENGLISH SUMMARY In 2014, the Chief Medical Officer and Director General of Research and Development commissioned a review of patient and public involvement in the National Institute for Health Research. The report on this review, entitled 'Going the Extra Mile' was published in March, 2015. It described the bold goal of expecting all people using health and social care, and increasing num...

PLAIN ENGLISH SUMMARY The 2011 standards for trustworthy development of healthcare guidelines published by the United States-based Institute of Medicine recommend that guideline developers involve patients and public representatives in the development process. The standards recommend that (1) patients and the public be actively involved as members on guideline development panels and (2) guideli...