BACKGROUND Primary health care clinicians are being encouraged to undertake qualitative research, however the in-depth interviewing skills required are not as straightforward as might be first supposed. While there are benefits and certain skills that clinicians can bring to interview-based research, there are important new skills to develop. To date there has been neither discussion about thes...

Patients and methods Patients with cr-FMF or their caregivers (paediatric patients) (N=16) were recruited through rare disease experts and patient support groups. Patients completed a 20 page pre-interview questionnaire and an in-depth 90 minute interview. Complete data (n=14) were quantified with topics focused on symptoms, diagnosis process, treatment experience, treatment needs and impact on...

BACKGROUND Interviews are among the most familiar strategies for collecting qualitative data. The different qualitative interviewing strategies in common use emerged from diverse disciplinary perspectives resulting in a wide variation among interviewing approaches. Unlike the highly structured survey interviews and questionnaires used in epidemiology and most health services research, we examin...

Patient-reported outcome (PRO) measures must provide evidence that their development followed a rigorous process for ensuring their content validity. To this end, the collection of data is performed through qualitative interviews that allow for the elicitation of in-depth spontaneous reports of the patients' experiences with their condition and/or its treatment. This paper provides a review of ...